Isabelle’s New Medication
Just a quick update on Isabelle’s condition since she’s being diagnosed with Infantile Spasms. (Read that original post here: http://clubrandy.com/post/9105237591/isabelle-medical-news) Though the spasms have decreased dramatically since she started her first medication, down from 70 seizures per day to about 20, they have to be completely gone before we can be confident that she’s out of the woods. So yesterday the neurologist made the call to start the second round of drugs to help stop the seizures.
As I mentioned, this new round will have a few side effects, but nothing as severe as the ones that Isabelle would experience if we have to go to the next round of drugs. (So we’re REALLY hoping that this new round works!) She will be on this new medication cocktail for two weeks, and then will have another EEG to see if the seizures have ended. It’s odd because a month ago I hadn’t even heard of Infantile Spasms, and now there’s a story on the front page of the Idaho Statesman this week. (You can read that story here: http://www.idahostatesman.com/2011/08/29/1776759/radical-brain-surgery-frees-baby.html#storylink=misearch)
Even though the medication she’s been on has not completely eradicated the seizures, we have noticed a change in Isabelle’s personality since they have been reduced. She is more alert, more interactive, and generally seems happier. Now, we just have to make them go away completely so we can move on with life. Again, prayers are always awesome.
R
